
Ngawai Moss
Ngawai Moss is a dedicated women’s health advocate whose interest in research was sparked by her participation in several studies during pregnancy. Her passion for safer maternity care stems from her lived experiences as a woman with epilepsy during pregnancy.
Ngawai is the former chair of the Clinical Reference Group for the National Maternity & Perinatal Audit, which works to improve maternity services and outcomes across the UK. She was honoured with the National Volunteer of the Year Award by the UK’s Healthcare Quality Improvement Partnership for her contributions.
Ngawai is also an honorary research fellow at Queen Mary University of London and a co-investigator on several women’s health and pregnancy studies. She collaborates closely with patients, clinicians, and researchers to ensure patient perspectives shape research agendas. She advises institutions like the Academy of Medical Sciences and NHS England, as well as universities and charities. In 2022, she was recognised by HDRUK for her contribution as a PPI co-investigator for MuMPreDiCT, a study focused on pregnant women managing multiple long-term health conditions.
Ngawai is a founding member of Katie’s Team, a women’s health PPI advisory group based in East London, and Elly Charity, which protects women’s health internationally through education and research. She has co-produced a community-led health literacy project for non-English-speaking pregnant women.
Ngawai also co-chairs a global multidisciplinary commission named BRIDGE (Better Research, Information and Data Generation for Empowerment) Commission, working to ensure women with chronic diseases are equipped to make shared decisions about their treatment before, during, and after pregnancy.
Previously, Ngawai worked in the marine sector for 12 years as a knowledge management professional.
Other projects Ngawai is involved with:
- TREASURE Working Group (part of a European Cooperation in Science and Technology (COST) project focused on maternal prenatal stress, adverse offspring outcomes, and strategies to maximise infant development.
- Preconception Health elements (as part of the NIHR Disparities Challenge)
- Co-Chair, BRIDGE Commission – Leading a multidisciplinary non-profit initiative BRIDGE (Better Research, Information and Data Generation for Empowerment) to enable women with chronic diseases to make informed reproductive health decisions.
- EpiSafe – Improving safety for pregnant women with epilepsy and their children (University of Liverpool)
- MuMPreDiCT – Enhancing maternity care for women with multiple long-term conditions (University of Birmingham)
- ABA-Feed – Supporting new parents with infant feeding (University of Birmingham)
- RADIANT – Developing data-driven approaches to trial randomisation (University of Birmingham)
- Improving care for heavy menstrual bleeding (University College London)
- AFFINITY – Optimising outcomes in IVF (University College London)
- Women’s Health Evidence Synthesis and Methodology Research Unit (Anglia Ruskin University)
- Advancing women’s health and research internationally. Leading work to improve health literacy for pregnant women with limited English proficiency (Elly Charity)
- Co-founder of Katie’s Team, a Patient and Public Involvement Advisory Group for women’s health research (Queen Mary University of London)
- Member, Child Health Steering Group, Academy of Medical Sciences
- Advisor, UK Epilepsy & Pregnancy Register
- Service User Representative, NHS England
- Member, Independent Steering Committee, University of Oxford, CoMPuTE research on patterns and outcomes in people with multiple long-term conditions
Ngawai also works with the following communities and groups:
- Women with multiple long-term conditions (MLTCs)
- Women with epilepsy
- Women and Families in East London (mainly South Asian)
- Migrant women navigating maternity care in the UK (mix of nationalities)
- Non-English or limited English speaking women
- Women with experience of heavy menstrual bleeding
- Families struggling with fertility
- First time mothers
- Grassroots community groups in Southend (seaside town, deprived areas)
View full list of publications via ORCID at https://orcid.org/0000-0001-9369-5072
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